*Long post ahoy!*
At 1pm, my mom and I left for our 45 minute drive to a neighboring city, where the women of our church were having a conference about dealing with various tough issues. During the drive, we talked, and I made a phone call to rearrange some doctor's appointments, something I'm only able to handle on rare, very good days. (I haven't had one of those since 2014, probably.)
We were late to the conference, but not any more than we'd intended to be, and we split to go to different "classes." I was going to the one on depression, to get some advice for family members. Mom had to bring in a padded seat for me. The class went really well, and I liked the speaker a lot. But it was about an hour and a half long, and by the end, my efforts at paying attention had paid off in me now being unable to stop yawning and also feeling super woozy and off-balanced.
Afterwards Mom and I went to get frozen yogurt, which was a new test addition to my diet. I got cake batter fro-yo and watermelon sorbet plus rainbow sprinkles, which is a far cry from the chocolate-and-strawberry-flavors-with-extra-chocolate-and-strawberries-plus-cookie-dough that I would have gotten before i was diagnosed with interstitial cystitis. Still good, though, and it lifted both my energy and my mood enough to do some quick shopping at Target. Thanks to my newest gabapentin dose (which has been kind of miraculous), I was able, a couple of days ago, to wear a skirt all day without the pain from the waistband getting to be too much, so now I'm stocking up on shirts, because I can finally wear them! Yay for skirts and shirts! Yay for not wearing dresses every day!
We then drove home, I ate dinner (which Mom cooked), and then I spent the rest of the day reading Armadale until 9pm, when it was time to get ready for bed. I washed my face, brushed my teeth, did my once-every-other-week shaving job, changed into my PJs, and took my meds. Then I realized I hadn't written my weekly blog post yet, so I stayed up a bit late working on that. By 11pm, though, I was too tired to continue, especially with 9am church the next day. So I decided to finish the blog post on Sunday and just pretend I'd posted it on time.
Between that rough night's sleep and doing a bit too much the day before, though, I was totally exhausted during church. The second hour, I was with the other young single adults and I caught a few thoughts from the lesson, about the beginning of Israel's Exodus with the manna and the Ten Commandments. The third hour, though, when I'm with all the adult women, I wanted everyone to shut up so I could go to sleep. We were talking about keeping the Sabbath Day holy, but I just was not there for that.
At home, Mom made me some lunch, and then I collapsed into bed for my usual post-church nap. I slept longer than I'm supposed to for a nap, but I was so exhausted I just didn't even care. After that, feeling somewhat better, I finished Saturday's blog post and did a few more things on my blog. At 6pm, my mom, my brother, and I had a education support group at the church, but half of the people weren't there, so we pretty much called the meeting off. After that, I spent the rest of the day reading Armadale and vaguely perusing social media. At 10pm, I got ready for bed.
After that, I did a discussion board for my Information Retrieval System Design class, as well as a sexual assault prevention course required for all students. I really appreciated that course. I think education on consent and healthy relationships is vital for everyone. I then wrote in my diary and decided to do some research to see if I could find some of the awesome designs that are available on TeePublic at lower prices. I discovered that Redbubble usually has the same designs for a bit less, if you include shipping in the calculation, but only if you get the Unisex tee. Yay for t-shirts! Yay for brilliant independent designers!
While I ate dinner, I read Daughter of the Zel by Phoebe Ritter. Then it was time for the twice-a-week ritual of playing video games while my brother watches. Right now, we're playing Super Mario Odyssey. I like it a good bit, which means I usually play just a bit too long for my fibro-y hands and eyes. Michael doesn't like it quite as much, which isn't unexpected: he's an Achiever/Killer while I'm an Explorer/Socializer (as seen here). After that, I read a little bit more, and then went with Mom to the library to exchange out my book pile. At 9pm, it was time for my shower, as well as the other nightly tasks. Before I went to sleep, I finished reading Daughter of the Zel.
Unfortunately, it's always a crapshoot whether I'll be totally okay or in a lot of pain immediately after an instillation. Today, the antiseptic ended up really stinging. It wasn't the worst I've ever had after an instillation, but I was pretty grumpy. After I got home and cleaned myself up, though, it died off some. I ate lunch, called my doctor to check whether he'd gotten the x-rays (he had), and then organized my friends list on Goodreads. Once that was done, I finished reading The Music of the Deep. Then I finally got to work on editing my current project, CUCUY. As soon as i started working on it, a few ideas for how to fix things that had been bugging me came to mind. Editing was still hard and slow, though, and I was plagued by the desire to go back to the beginning and start my editing cycle over. If I did that, though, i feared there would be too much left to do in the pages I hadn't yet gotten to. I was also afraid of falling into the common writing trap of getting stuck editing and reediting the beginning over and over again and never making any actual forward progress.
I was pulled away from that issue by the slight disaster that is my beloved cat, Spartacus. As he often does, he had decided to climb up into my lap and sleep there, between my stomach and the laptop. But he wanted all the lap space to himself, so he stretched out a little too far, pushing my laptop to the floor. The crash startled him, and as he burst out of my lap, he left a pawful of nice, deep scratches on my left arm. So I had to stop and go ask Mom for a bandage large enough to cover them.
After that, I had dinner, while I started and pretty quickly decided to DNF Midnight by Stefani Chaney. We had a little "party" for my brother's birthday, which was basically just cake and him struggling to communicate his appreciation for his gifts. While I waited for him to decide if he wanted to play video games an extra day as a birthday present, I reread the entirety of Wither by Lauren DeStefano and started on the sequel, Fever. I also switched my laundry into the dryer. My brother didn't end up telling me anything, so at 7pm, I just did my regular exercise, 30 minutes on my exercise bike while using music and the wonders of my imagination to semi-disassociate from this plane of existence (because exercising when you have chronic pain/fatigue is important, but also not at all enjoyable).
Then I went back to work on CUCUY for a little while. A little after 9pm, I got ready for bed. Before I went to sleep, I finished reading Fever.
After that I ate dinner and read the entirety of Shadow Weaver by MarcyKate Connolly while waiting for my brother to also finish his dinner. It was time for my second video game session of the week, which, as usual, involved a lot of arguing about game preferences and how terrible I am at playing. Once we finished there, I did my exercise biking and got ready for bed. Before I went to sleep, I read some of Writer to Writer by Gail Carson Levine and admired the lovely bruising underneath the cat scratches from the day before.
What did feel like the right answer, though, was going back to the beginning of the manuscript and starting the edit over in the hopes of a) getting some more clarity and b) finding a part of the book that I didn't actually hate. That's something I've been wanting to do for weeks now, this week more than ever. So, since they were encouraging me to do what I needed to do to feel better, I decided to go ahead and do that. As soon as I read the first line of my book again, I felt much better. So it turned out, I guess, that was the right thing to do!
Unfortunately, my brain fog was really flaring up, so I decided to take a Mayo Clinic-approved 30 minute nap before I did anything else. I woke up just as Mom came home, and we went to pick up one of my meds at the store. Then I ate lunch and got back to work on CUCUY.
At dinner, I reread Defy the Stars by Claudia Gray... and then kept reading it, because it's great and I love it. In the midst of that, I got a call from my GI doctor saying that, after looking at the tests, it appears that I have IBS-C worsened by slow intestinal motility, which is likely related to the same autonomic issues that cause my POTS/NMH. He wants me to try the Low FODMAP Diet for a few weeks and see if that helps bring my abdominal distention down. Surprisingly, given how limited my diet already is, it's actually doable, but of course not at all fun. Once again I will be incapable of eating out at any restaurants. Additionally, given my past experience with elimination diets, I really doubt whether it's going to be effective. Still, I intend to give it a try... starting next week.
At 7pm, per the usual, I exercised, and then it was back to editing CUCUY. At about 9pm, I went to take my shower and get ready for bed. Before I went to sleep, I finished reading Defy the Stars.
I got up again at 11am, and I did feel more normal, although still sort of weird. Sleep is important, friends! So I ate lunch, got ready for the day while perusing social media, and then spent some time going in between reading Defy the Worlds, playing the new Harry Potter: Hogwarts Mystery game (which is pretty decent!), and updating my Word documents to reflect my new thoughts for my books. I also did some research on the Low FODMAP Diet and IBS-C. By 2pm, I was entirely exhausted. Still, I pushed through, because c'est mi vie. During dinner, I took a break to discuss various sciencey things I barely understand with my brother, and then I finished Defy the Worlds. At 8pm, I got my exercise (late, I know), after which I got ready for bed, and I read some of Jeweled Fire by Sharon Shinn before I went to sleep.