Unfortunately, the medication change has had almost no effect on my physical state. I'm still in severe pain, all over, with no relief. I suffer from muscle weakness and loss of balance, and I have truncal titubation tremors whenever I exert myself much more than I am now (and right now, I'm almost on bed rest). I need naps, like, a lot.
It's something. It means that I can finally make some progress with my writing again. But it's not the miracle I'm looking for. It's not enough for me to have a life again.
This past week, my interstitial cystitis also decided to flare up yet again, making it almost impossible for me to get the sleep I so desperately need. Not only can I not wear pants right now, I can't wear underwear either. I spend all day with my heating pad on. Even then, my bladder is like a never-ending siren shrieking inside of me. I decided to try a bladder instillation, where they put medication into your bladder while you're awake (as opposed to a hydrodistention, where they also stretch your bladder as far as they can, a process so painful it must be done under anesthesia). It helped for a few hours, and then my pain became even worse. I'm still waiting for it to settle. I hope that it does.
I'm also now dealing with the Specific Carbohydrate Diet on top of the already very strict IC Diet, for two weeks while I take an antibiotic to help with my IBS. I am ridiculous hungry, and I really hope it's worth it.
And so the fight goes on.